My beautiful necklace in honor of my precious angel. This gift by far is the best gift ever and it touches my heart every time i look in the mirror.
Also despite everything last week, Mackenzie had a meeting with her Step Ahead Coordinator, Kathleen, who we so love..and look what Pumpkin did. We are so excited. We have to keep practing but i'm so glad i got it on video and she did so awesome.
sorry it's sideways, for some reason i had more problems loading this go around. Enjoy
So on to treatment.. As most knew we had a appointment with the cardiologist on Thursday.. And just incase we haven't already told you guys which i'm sure i have, i have to say it again, We love Dr. Luther Williams. He was so ready to start treatment but here's why we can't start it until tomorrow. Well first thing was, we apparently have to go and pick up the medicine first, then take it back to them because they have to adminster the first dose. (yeah it's just like giving her her prevacid but ok whatever) Well then apparently after we give to her, we have to go back in 48 hours and they are going to connect her to a ekg machine for 24 hows to see how or if it is effecting her (this is something we will be coming home with).. Well with it being a thursday, we couldn't go back in 48 hours as they are closed on weekends and then today being a holiday, we couldn't do today.. So tomorrow we start. she will be getting .65 ml of propranol every 8 hours so it will be 6,2, and 10 are her times so we have to go back tomorrow to see Dr. Williams so they can give her the first dose at 2. Still not sure how long she will be on it but her eye is still coming and going. So i'm ready and can't wait even though all we are doing is giving her medince but still. I"m just happy to finally have a plan in motion.
Here is a pic of pumpkin this weekend. We finally got to try some jeans and they semi worked. She is so like mommy, can never find the right jeans. :0)
She weighed in at 9 lbs 1 1/2 oz at the cardio office.